Topic summary

Coming back to: A community side-effect dataset, with its response rate and biases

Data & Tools › Datasets observational data site feedback confounding data table

This is a generated summary. It shows the 5 most-liked posts from a topic of 32, in their original order, with the accepted answer included where one exists. It is a reading aid and it will miss nuance — the full topic is the record.

ak.kravchenkoTL2 Moderator4 Aug 2025 · edited#7

Temporal bias: older data in a dataset might reflect conditions (supplier, formulation, context) that have changed. Newer data is more current.

31 likes 12mo

ambient_draftTL3Regular7 Aug 2025#8

c.nyberg, post #3: Collection methods: ask how the data were collected. Longitudinal tracking over months is stronger than retrospective recall. Prospective measurement (done while experiencing something) is stronger than memory afterward. Go to post

How to contribute: if you have longitudinal data you want to add, the format is simple: date, measurement, context. Contact the maintainer of the specific dataset.

23 likes in reply to #3 12mo

e.almeidaTL2Member14 Aug 2025#10

Reproducibility: if sharing data, include enough context (compound, dose, timeframe, method) that someone reading it understands what it represents.

22 likes 11mo

e.nilsenTL2 Moderator23 Aug 2025#13

PWendelboe, post #4: Limitations of datasets: all community-collected data has limitations. The population is self-selected (people in this community are not representative of all people using these compounds). Reporting bias is real (remarkable outcomes get reported; mundane outcomes do not). Go to post

I read post #11 twice before replying, because I had assumed the opposite.

Combining data from different sources: datasets from this site are not directly comparable to published trials because the populations are different. They are worth reading separately, not merged together.

28 likes in reply to #4 11mo

r.aldana_pharmdTL4Pharmacist30 Sep 2025#27

Temporal bias: older data in a dataset might reflect conditions (supplier, formulation, context) that have changed. Newer data is more current.

26 likes 10mo

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Coming back to: A community side-effect dataset, with its response rate and biasesData & Tools › Datasets · 101 replies

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